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Hello my name is Joshua and I'm from Milwaukee
Wisconsin...................
I am 8 years old and was diagnosed on
06/29/02 at the age of 3 1/2 with pre b-cell acute lymphoblastic
leukemia with t-aml. It's so hard to believe I'm finished with
my treatment, my mommy didn't know how we would get past the
first week. I was born on 12/13/1998, they had to do a
emergency cesarean section because I was positioned wrong and my
heart rate was dropping fast. I was the best baby you could ask
for. I never cried or made any fuss not even as a toddler. I
had intermittent fevers of 102 and above since birth. Every
time my mom called the pediatrician he would just tell her to
give me some Motrin or Tylenol and keep an eye on me. If the
fever last more than three days he would say to bring me into
the office. Well the fevers never lasted that long 2 days
tops. About 4 weeks before I was diagnosed I was having very
high fevers on and off again for weeks. One day I had a lot of
pain in my arms and I couldn't raise my arms above my head my
mom thought maybe I had broken my collar bone and took me into
our local emergency room. Once there they did some x-rays and
found nothing wrong. Mom was told that I might have strained
something, so home we went. One week later, nothing had changed
my arms were still hurting really bad so back to the emergency
room we went. Again they took more x-rays and still didn't find
anything wrong. While in the ER my mom noticed some little red
dots on and around my shoulder and in my mouth, mommy pointed
them out to the doctor
and he said the dots on my shoulder was a
rash from the sun and the ones in my mouth were from me biting
the insides of my mouth. (Mommy knows now those little red dots
were Petechiae pronounced (pet-tea-key-eye). On the 22nd of
June, 02 me and mommy went to a pool party at a friends house.
Mommy felt so bad for me that day, because I looked so sad and
didn't want to swim or play with anyone. Mom thought I was
coming down with the flu. One week later on June 29th, 02
(that's the day mommy's whole world fell apart) I was not
feeling very well that morning I was very pale and wouldn't eat
my breakfast (and for me not to eat that meant something had to
be wrong). I always ate everything any anything, I would take
food from my plate and stuff my little cheeks until no more
would fit, it was almost like I wanted to save some for later.
I have two brothers and two sisters mommy wondered if I thought
maybe they were going to take my food from me. I was also very
warm that morning, so instead of taking me to another one of our
local ER's mommy decided to take me to Children's Hospital of
Wisconsin. It was the longest day of her life. When I got
there I felt a lot better and didn't even have a fever anymore,
but I still looked very pale. The nurse came in and asked my
mommy all kinds of questions (mommy's not even
sure what they
all were anymore) I know they asked her if we had traveled
outside the united states. Next they wanted blood samples from
me mommy told them OK but they only had one chance to get the
needle in my vein. Mommy had seen too many children being
poked over and over again all because someone didn't know what
they were doing or because they were new to drawing blood. Well
after a few hours the blood work finally came back and mommy
couldn't believe what she heard from the doctor's (leukemia)
mommy really didn't know much about it other than it was a
cancer. Then she asked why her little boy he never did anything
wrong and didn't deserve this. Mommy went into shock after
hearing that I had cancer she really don't remember to much
after that. All she knew is that she wanted to take her sweet
little boy home and say this was all a bad dream. She asked
herself over and over again what did she do wrong? I had a
white blood count of 167,400 my hemoglobin was 3.6 my platelets
were 12,000 my red blood count was 1.50 and my ldh was 2895 so I
was immediately diagnosed with High Risk Acute Lymphoblastic
Leukemia without even having a spinal tap or a bone marrow
aspiration done. The following day I was taken to the operating
room where a medi port was
placed in my chest for venous
access. They also did a spinal tap at this time. Analysis of
my spinal fluid showed no evidence of meningeal disease. I
required a lot of packed red blood cells and platelet
transfusions throughout my hospital stay which was 11 days. I
was put on POG #9905 Regimen A for standard risk leukemia. I
went from high risk to standard risk because they found an extra
chromosome only in my leukemia cells. I'm now in remission and
I have completed 3 1/2 years of chemotherapy as of February 05.
Also I never lost my hair during chemo treatment, I must have
very strong hair genes. Mommy is still amazed everyday at how
strong I am, she is very very proud of me. Mommy can't believe
that 4 years have gone by already. Mommy says that I'm her
LITTLE HERO! |